Harrison Walter (#575) competes on his school’s
cross-country and track teams. Photo | Hal Walter
The Walter family’s struggle with autism came in for a little attention in the press over the weekend.
My friends Hal and Mary and their son Harrison have been enduring the tender mercies of the Medical-Industrial Complex as mom and dad strive to get their teenager the expensive behavioral therapy that may help him with the impulse-control issues common among the neurodiverse.
Harrison focused on his schoolwork. Photo | Rebekah Cravens
Regan Foster of The Pueblo Chieftain — where Hal and I first met back in the Eighties — wrote about the Walters’ difficulties in a straight news piece and a more personal sidebar; both made the newspaper’s home page this morning.
The details of this particular tale of woe may be new to you, but the overarching theme is all too familiar: What happens when circumstances upend a hard-working American family that earns a bit too much to qualify for public assistance, but not enough to cover the out-of-pocket costs associated with private insurance?
“A $3,000 deductible plus a 30 percent co-pay is the same as not having insurance, except you have to pay for the insurance,” said Hal.
Harrison is designated as disabled, but does not qualify for a Children’s Extended Services waiver for Medicaid because his sleep habits, “while not great, are not entirely horrible,” according to Hal.
The amount of paperwork required in raising a neurodiverse kid (like appealing a Medicaid waiver denial) would be enough to put anyone to sleep.
That this is a stumbling block instead of a side note seems absurd; Harrison’s abilities as a student and athlete can be offset by his impulsive, occasionally violent behavior, which seems a greater concern for society than how many Z’s the family bags nightly. Someone is definitely on the nod here, and it’s not the Walters, who are appealing the decision to deny a CES waiver.
Hal and Mary are both long-distance runners, with all the stamina that requires and then some, but theirs is a race against time. Harrison is 13 going on 14, and as special-ed teacher Carrie Driver notes: “We have four and a half years to get him ready for life and to give him skills that are appropriate for him to be independent.”
• Editor’s note: You can read more at Hal’s blog, Hardscrabble Times (which is updated irregularly), and in his column at Colorado Central.
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